Hannah Kiresuk, 19, became diagnosed with juvenile
refractory myasthenia, a rare autoimmune
neuromuscular disease, while she was a teen. thru her four years of treatment,
Hammy, a crammed cow toy, has stayed by way of her facet as she persevered
greater than 30 surgical procedures and methods. Hammy went lacking Sunday and
Kiresuk’s own family is hoping for the toy’s safe return earlier than her
subsequent chemotherapy infusion on Friday— which would be her first with out
the cherished toy.
“dropping him is a massive deal, hammy can't be replaced,”
Kiresuk, of Roseville, Minn.,
wrote on the group Hannah’s braveness facebook web page.
Hammy has passed through the identical medical processes as
Kiresuk, which include excision of the bone cyst, eye surgical procedure, thymectomy,
fistula placement, and tracheostomy. The cow turned into created on the Minnesota
state fair and Kiresuk made his medical institution gown out of her preferred
child blouse and two of the zipper pouches have been made from her cat’s
blanket.
“He can’t be replaced, I need him,” she wrote on Sunday.
in line with The youngsters’s medical institution of Philadelphia,
myasthenia gravis (MG) sufferers’ nerves and muscle groups are not able to talk
properly, main to muscular weak point. The disorder happens in approximately 10
in a million people, 10 percentage of which are children.
Kiresuk’s MG worsened as she got older and he or she’s now
in persistent respiration failure— she is hooked up to a breathing device 18
hours an afternoon. in step with her fb page, she gets most of her medical care
in San Diego due to the severity of
her disorder. She’s also been recognized with a number of different illnesses,
which include reflex sympathetic dystrophy and obsessive compulsive disorder.
Kiresuk and her family wish she can receive a bone marrow
transplant, one in every of few FDA-authorized treatments for MG, according to
her fundraising web page at the kids’s Organ Transplant affiliation. She’s been
denied coverage through insurance businesses and the transplant might value
about $500,000. there's no recognized cure for MG.
No comments:
Post a Comment